News
News and updates on the activities carried out within HELIOS and beyond
NHS Approves Revolutionary CRISPR Gene Therapy for Sickle Cell Disease
NHS Approves Revolutionary CRISPR Gene Therapy for Sickle Cell Disease In a landmark decision, the National Health Service (NHS) in England has approved the use
Our first Short-Term Scientific Mission on standardizing annotation of structural hemoglobinopathies!
In March 2023, the first HELIOS-funded Short-Term Scientific Mission (STSM) was completed. The project was carried out by HELIOS member Maria Xenophontos from the Cyprus
HELIOS website goes live!
WG5 – Dissemination and outreach has just published the HELIOS website that you can visit here!
HELIOS Survey on molecular research
HELIOS activities have started! A new survey is going to be launched by HELIOS Working Group 1 – Molecular Research and Diagnosis.
HELIOS Survey on treatments in haemoglobinopathies
HELIOS Working Group 2 – Clinical research and patient management is working on an online survey aimed at understanding the current state of implementation of new and emerging therapies/treatments in haemoglobinopathies.
HELIOS Survey on haemoglobinopathy data
The activities of Working Group 3 – Data management, sharing, and analysis just started! It is setting up a survey to collect high-level information about the current availability, formats, and FAIRness of haemoglobinopathy data.