HELIOS Working Group 2 – Clinical research and patient management is working on an online survey aimed at understanding the current state of implementation of new and emerging therapies/treatments in haemoglobinopathies.
This working group focuses on the clinical aspect of the disease, including clinical management, aiming at promoting large-scale, multi-centre clinical research in haemoglobinopathies, harmonise clinical procedures across the network, and monitoring the use of new and emerging therapies/treatments.
Updates on this activity are expected in the future. Keep following for additional news!
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