Our mission
To establish and foster interactions between experts, stakeholders, countries and institutions in the field of haemoglobinopathies
Click Here
To facilitate the integration of national and international research activities, providing an ideal environment to pursue long-term multidisciplinary research
Click Here
To identify needs and harmonise procedures and protocols related to different aspects of haemoglobinopathies in Europe and beyond, including clinical management, molecular diagnosis, data sharing and analysis
Click Here
Upcoming events
There are currently no events.
Our webinars
Upcoming Events
Join Us
How to participate?
To join HELIOS and take part in its activities, visit the COST Action official webpage and apply to one or more Working Group of interest.
Recent news
HELIOS News
Our first Short-Term Scientific Mission on Standardizing Annotation of Structural Hemoglobinopathies!
In March 2023, the first HELIOS-funded Short-Term Scientific Mission (STSM) was completed. The project was carried out by HELIOS member Maria Xenophontos from the Cyprus Institute of Neurology, in collaboration with
May 27, 2024
No Comments
HELIOS News
HELIOS website goes live!
WG5 – Dissemination and outreach has just published the HELIOS website that you can visit here!
February 15, 2024
No Comments
Working Group Activities
HELIOS Survey on molecular research
HELIOS activities have started! A new survey is going to be launched by HELIOS Working Group 1 – Molecular Research and Diagnosis.
February 13, 2024
No Comments
Action Details
CA22119 – Haemoglobinopathies in European Liaison of Medicine and Science (HELIOS)
Memorandum of Understanding – 029/23
CSO Approval date – 12/05/2023
Start date – 20/09/2023
End date – 19/09/2027