HELIOS Survey on molecular research
HELIOS activities have started! A new survey is going to be launched by HELIOS Working Group 1 – Molecular Research and Diagnosis.
HELIOS Survey on treatments in haemoglobinopathies
HELIOS Working Group 2 – Clinical research and patient management is working on an online survey aimed at understanding the current state of implementation of new and emerging therapies/treatments in haemoglobinopathies.
HELIOS Survey on haemoglobinopathies data
The activities of Working Group 3 – Data management, sharing, and analysis just started! It is setting up a survey to collect high-level information about the current availability, formats, and FAIRness of haemoglobinopathy data.