🗞️ New Publication: Mapping Expertise and Educational Needs for Hemoglobinopathies
We are delighted to share that HELIOS Working Group 4 (WG4) has published a new article in Blood & Global Health titled “Mapping Expertise and Educational Needs for Hemoglobinopathies: Insights from HELIOS COST Action Healthcare Professionals.” This study provides the first multicentre survey-based assessment of clinical expertise and education priorities among health professionals involved in […]
đź“ŁCall for Expressions of Interest: New Leadership and Coordination Roles within HELIOS
As HELIOS moves into the second half of the project, we are pleased to announce the opening of several leadership and coordination positions within the HELIOS Leadership and Core Group. These roles are central to advancing our mission of fostering collaboration, scientific excellence, and meaningful engagement across the HELIOS community. The available positions offer a […]
🗞️ New HELIOS Research Article Published in HemaSphere!
We are pleased to announce that members of the HELIOS consortium have published a new peer-reviewed research article in the journal HemaSphere. This publication reflects the ongoing scientific efforts within HELIOS and contributes valuable insights to the field of hematology. The article presents recent advances developed through collaboration across the HELIOS network, highlighting the consortium’s […]
đź“ŠBuilding Gender-Inclusive Research Cultures – A HELIOS Survey
We’re excited to announce the launch of the HELIOS Survey: Building Gender-Inclusive Research Cultures! The survey aims to collect information on institutional and national practices related to Gender Equality and Inclusiveness principles. Join our community of researchers and policymakers by sharing your insights. Together, we can improve the future of research and create more inclusive […]
đź“…HELIOS at ASCAT 2025: Join Our Dedicated Session and Booth in London
We are pleased to announce that HELIOS CA22119 will be actively participating in the upcoming ASCAT Conference 2025, taking place at ExCeL London. đź“… On 3 October 2025, from 12:15 to 13:15, we will host a dedicated session in Room 13:“Mapping Practices and Fostering Harmonisation in Haemoglobinopathies.” During this session, we will present results from […]
Exploring AI Knowledge Gaps in Hematology- Abstract PB3837 Accepted at EHA 2025!
Exciting News: Abstract PB3837 Accepted at EHA 2025! We’re proud to announce that our abstract, PB3837, has been accepted for presentation at the European Hematology Association (EHA) 2025 Congress! This research is a collaborative effort led by Elisabetta Mezzalira, a member of both HELIOS COST Action and ERN-EuroBloodNet (European Reference Network on Rare Hematological Diseases). […]
NHS Approves Revolutionary CRISPR Gene Therapy for Sickle Cell Disease
NHS Approves Revolutionary CRISPR Gene Therapy for Sickle Cell Disease In a landmark decision, the National Health Service (NHS) in England has approved the use of Casgevy, a groundbreaking CRISPR-based gene therapy, for patients aged 12 and older suffering from sickle cell disease (SCD) with recurrent vaso-occlusive crises. This approval marks a significant advancement in […]
Our first Short-Term Scientific Mission on standardizing annotation of structural hemoglobinopathies!
In March 2023, the first HELIOS-funded Short-Term Scientific Mission (STSM) was completed. The project was carried out by HELIOS member Maria Xenophontos from the Cyprus Institute of Neurology, in collaboration with Prof. Celeste Bento at the University Hospital Coimbra in Portugal. Maria spent two weeks working with Prof. Bento on a project titled “Enhancing Structural […]
HELIOS website goes live!
WG5 – Dissemination and outreach has just published the HELIOS website that you can visit here!Â