Building Gender-Inclusive Research Cultures – A HELIOS Survey
We’re excited to announce the launch of the HELIOS Survey: Building Gender-Inclusive Research Cultures! The survey aims to collect information on institutional and national practices related to Gender Equality and Inclusiveness principles. Join our community of researchers and policymakers by sharing your insights. Together, we can improve the future of research and create more inclusive […]
HELIOS at ASCAT 2025: Join Our Dedicated Session and Booth in London
We are pleased to announce that HELIOS CA22119 will be actively participating in the upcoming ASCAT Conference 2025, taking place at ExCeL London. 📅 On 3 October 2025, from 12:15 to 13:15, we will host a dedicated session in Room 13:“Mapping Practices and Fostering Harmonisation in Haemoglobinopathies.” During this session, we will present results from […]
Exploring AI Knowledge Gaps in Hematology- Abstract PB3837 Accepted at EHA 2025!
Exciting News: Abstract PB3837 Accepted at EHA 2025! We’re proud to announce that our abstract, PB3837, has been accepted for presentation at the European Hematology Association (EHA) 2025 Congress! This research is a collaborative effort led by Elisabetta Mezzalira, a member of both HELIOS COST Action and ERN-EuroBloodNet (European Reference Network on Rare Hematological Diseases). […]
NHS Approves Revolutionary CRISPR Gene Therapy for Sickle Cell Disease
NHS Approves Revolutionary CRISPR Gene Therapy for Sickle Cell Disease In a landmark decision, the National Health Service (NHS) in England has approved the use of Casgevy, a groundbreaking CRISPR-based gene therapy, for patients aged 12 and older suffering from sickle cell disease (SCD) with recurrent vaso-occlusive crises. This approval marks a significant advancement in […]
Our first Short-Term Scientific Mission on standardizing annotation of structural hemoglobinopathies!
In March 2023, the first HELIOS-funded Short-Term Scientific Mission (STSM) was completed. The project was carried out by HELIOS member Maria Xenophontos from the Cyprus Institute of Neurology, in collaboration with Prof. Celeste Bento at the University Hospital Coimbra in Portugal. Maria spent two weeks working with Prof. Bento on a project titled “Enhancing Structural […]
HELIOS website goes live!
WG5 – Dissemination and outreach has just published the HELIOS website that you can visit here!