The activities of Working Group 3 – Data management, sharing, and analysis just started! It is setting up a survey to collect high-level information about the current availability, formats, and FAIRness of haemoglobinopathy data.
Working group 3 aims at promoting and facilitating the sharing of disease-specific data in a standardised and FAIR manner that will enable large-scale studies and integration of different datasets. It will also facilitate the mapping of the current situation and data standardisation.
If you are willing to join HELIOS working group 3 apply here!